Recently, the Recognize, Assist, Include, Support & Engage (RAISE) Family Caregiving Advisory Council delivered its initial report to Congress.The culmination of a two-year, multi-faceted effort that gathered input from family caregivers across the country, the report provides an overview of many of the issues faced by family caregivers nationwide and provides recommendations for addressing them.
The 26 recommendations fall under five goals:
- Increasing Awareness of Family Caregivers to increase public understanding of the contributions caregivers make, including helping individuals self-identify as caregivers so that they can get the support they need.
- Engaging Family Caregivers as Partners in Healthcare and Long-Term Services and Supports to better integrate family caregivers into healthcare processes and systems.
- Improving Access to Services and Supports for Family Caregivers including counseling, respite care, peer support, training on common in-home medical tasks, and practical assistance like transportation. Also included is a recommendation for strengthening the paid caregiver workforce.
- Financial and Workplace Security for Family Caregivers to decrease the impact family caregiving can have on the financial well-being and professional lives of caregivers.
- Generating Research, Data, and Evidence-Informed Practices to help create policies and interventions that meaningfully help family caregivers.
The report also includes an inventory of federally funded efforts to support caregivers and interviews with 26 caregivers representing a range of caregiving situations and needs.
The recommendations from the report are the first step to developing a national strategy that will outline critical actions that can be taken at the federal and state levels and by local communities, philanthropic organizations, healthcare providers and providers of long-term services and supports, and others to better support family caregivers.
The RAISE Family Caregivers Act, (Public Law 115-119) directs the Secretary of Health and Human Services to develop a national family caregiving strategy. To inform that work, the RAISE Act also directed the establishment of the Family Caregiving Advisory Council providing recommendations on effective models of both family caregiving and support to family caregivers, as well as improving coordination across federal government programs.
The Administration for Community Living is leading the implementation of the RAISE Act and facilitates the work of the RAISE Family Caregiving Advisory Council.
The John A. Hartford Foundation and the National Academy for State Health Policy also support the Council, including the development of the initial report, by providing resources, technical assistance, and policy analysis. The National Alliance for Caregiving supported the development of the report, collecting and producing the interviews that bring the caregiver's voice to the report. The interviews also can be seen in a series of videos.
About the Administration for Community Living
The Administration for Community Living was created around the fundamental principle that older adults and people of all ages with disabilities should be able to live where they choose, with the people they choose, and with the ability to participate fully in their communities. By funding services and supports provided by networks of community-based organizations, and with investments in research, education, and innovation, ACL helps make this principle a reality for millions of Americans.
- Learn more about the RAISE Family Caregiving Advisory Council at ACL.gov/RAISE.